Disrupción biográfica y discapacidad cognitiva en el daño cerebral adquirido
visibilización narrativa
Resumen
Este artículo tiene como objetivo visibilizar vivencias sobre el daño cerebral adquirido (DCA) y la discapacidad cognitiva en Costa Rica, realizando un análisis de narrativas. Se llevaron a cabo entrevistas semiestructuradas a dos personas con DCA, una persona familiar y una persona profesional que trabaja con personas con DCA. A partir de un análisis fenomenológico se extrajeron las categorías: (1) disrupción biográfica; (2) disrupción ontológica desde el sistema familiar y laboral; (3) disrupción social desde las barreras y límites del entorno, incluyendo repercusiones de la pandemia por COVID-19; y (4) la resignificación como metaperspectiva de nuevos significados de la experiencia. Las narrativas recopiladas muestran los múltiples cambios que las personas suelen enfrentar en su reintegración al mundo social, con la particularidad de su vivencia en un país latinoamericano, caracterizado por un tejido vincular proximal y características sociosanitarias diferentes a otras latitudes.
Se discute la importancia del acercamiento narrativo para rescatar resignificaciones de la identidad, así como su función de conexión y sentido en la construcción de andamiajes socioemocionales y psicosociales.
Citas
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